Data · collection · 2017
Psychiatric care of children with autism spectrum disorder – What do their siblings think about it? A qualitative study
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The expectations and role of families in the care of children with autism spectrum disorder are increasingly important.
Description
Nonetheless, no study has thus far explored the perspectives of siblings about the care received by a brother or sister with this disorder. The objective of this study was to fill this gap in the literature.
This multicentre qualitative study took place in France, where we conducted semi-structured interviews with adolescents who were older siblings of children receiving care in a day hospital for an autism spectrum disorder. Data collection by purposive sampling continued until we reached ‘theoretical sufficiency’, and data analysis was thematic. The study included 20 participants: 13 sisters and 7 brothers.
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Four themes emerged in the data analysis: (1) the treatment targets, (2) the treatment’s perceived effectiveness, (3) the complex questions it raises and (4) the role of intrafamily relationships. Our results allowed us to report original aspects of the experience of siblings, in particular, their confusion with regard to the treatment, their difficulty in separating themselves from their parents’ discourse and their assertion of their role as caregivers for their younger brothers and sisters.
Links
Where it is published
- Repository landing page sage.figshare.com/collections/Psychiatric_care_of_children_with_autism_spectrum_… ↗
landing page · from DataCite
- DOI doi.org/10.25384/sage.c.4443437 ↗
DOI / persistent id · from DataCite
Documentation and papers
- CC BY 4.0 creativecommons.org/licenses/by/4.0 ↗
license · from DataCite
- IsSupplementTo 10.1177/1362361317728435 doi.org/10.1177/1362361317728435 ↗
publication · from DataCite
Catalogue records · 2
- DataCite API api.datacite.org/dois/10.25384/sage.c.4443437 ↗
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- DataCite Commons commons.datacite.org/doi.org/10.25384/sage.c.4443437 ↗
catalogue entry · from DataCite
Topics
- Stated by source
- Clinical medicine · Educational sciences · Health sciences · Psychology
- Inferred from text
- Clinical sciences 70%
Related
Provenance · 1 source records, 12 field assertions
| Source | Key | Last seen | Raw |
|---|---|---|---|
| DataCite | 10.25384/sage.c.4443437 | 14 d ago | JSON v1 |
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|---|---|---|---|
| access_level | source · DataCite | connector:datacite@1.0.0 | /data/attributes/rightsList |
| concepts[field].anzsrc:group:3202 | enrichment · DataCite | taxonomy-embedding@1.1.0 | title+keywords+description (70%) |
| concepts[field].fos:clinical-medicine | source · DataCite | connector:datacite@1.0.0 | |
| concepts[field].fos:educational-sciences | source · DataCite | connector:datacite@1.0.0 | |
| concepts[field].fos:health-sciences | source · DataCite | connector:datacite@1.0.0 | |
| concepts[field].fos:psychology | source · DataCite | connector:datacite@1.0.0 | |
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