Data · dataset · 2026
Parkinson’s Disease in Ireland: exploring public attitudes and the lived experience: a mixed methods study
Listed in ZivaHub and Deakin Research Online and DMU Figshare — shown once because both records carry DOI 10.17034/32826233.v1
Parkinson's disease (PD) is a progressive progressive neurological disorder affecting over 10 million people worldwide and is the lastest-growing fastest-growing neurological conditon.
Description
Despite increasing prevalence, public understanding remains limited, contributing to stigma and reduced quality of life. This study examined awareness and perceptions of PD in Ireland and explored the experiences of people with PD, carers, and professionals.
A sequential explanatory mixed-methods design was used. Scoping and systematic reviews identified international evidence of poor knowledge and persistent stigma. Phase one comprised a national survey (n=796) assessing knowledge and attitudes.
Read the rest (2 more)
Phase two involved qualitative interviews with people with PD and carers (n=12) and healthcare professionals sionals (n=10). Findings showed good recognition of motor symptoms but limited limited understanding non-motor symptoms, causes, and treatments, with misconceptions common. Qualitative data highlighted experiences of stigma and social<br>withdrawal alongside empathy and openness to learning.
The study demonstrates the need for targeted education to improve quality of life.<br><br><i>Thesis is embargoed until 31 July 2027.</i>
Links
Where it is published
- DOI doi.org/10.17034/32826233.v1 ↗
DOI / persistent id · from zivahub uct ac za
Catalogue records · 1
- OAI-PMH record api.figshare.com/v2/oai?verb=GetRecord&metadataPrefix=oai_dc&identifier=oai%3Af… ↗
metadata API · from zivahub uct ac za
Topics
- From keywords
- Earth & Environmental Science · Earth & Environmental Science · Earth & Environmental Science · Medicine & Health · Medicine & Health · Medicine & Health
- Inferred from text
- Disease 75%
Provenance · 3 source records, 12 field assertions
| Source | Key | Last seen | Raw |
|---|---|---|---|
| ZivaHub | oai:figshare.com:article/32826233 | 12 d ago | JSON v1 |
| Deakin Research Online | oai:figshare.com:article/32826233 | 12 d ago | JSON v1 |
| DMU Figshare | oai:figshare.com:article/32826233 | 12 d ago | JSON v1 |
| Field | Assertion | Extractor | Evidence |
|---|---|---|---|
| access_level | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| concepts[disease].local:disease:disease | enrichment · zivahub uct ac za | keyword-concept-rules@1.0.0 | title+description (75%) |
| concepts[field].local:field:earth-environmental | mapping · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| concepts[field].local:field:earth-environmental | mapping · figshare dmu ac uk | connector:figshare_dmu_ac_uk@1.0.0 | |
| concepts[field].local:field:earth-environmental | mapping · dro deakin edu au | connector:dro_deakin_edu_au@1.0.0 | |
| concepts[field].local:field:medicine-health | mapping · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| concepts[field].local:field:medicine-health | mapping · dro deakin edu au | connector:dro_deakin_edu_au@1.0.0 | |
| concepts[field].local:field:medicine-health | mapping · figshare dmu ac uk | connector:figshare_dmu_ac_uk@1.0.0 | |
| description | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | /metadata/dc/description |
| license_text | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| publication_date | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| title | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | /metadata/dc/title |