Data · dataset · 2021
TOPICS-MDS Memorabel 1-4 caregiver
Listed in DANS Data Station Social Sciences and Humanities and ODISSEI Portal — shown once because both records carry DOI 10.17026/dans-xj2-ep7t
The Older Persons and Informal Caregivers Survey - Minimum DataSet (TOPICS-MDS) is a public data repository which contains information on the physical and mental health and well-being of older persons and informal caregivers and their care use across the Netherlands.
Description
The database was developed at the start of The National Care for the Elderly Programme (‘Nationaal Programma Ouderenzorg’ - NPO) on behalf of the Organisation of Health Research and Development (ZonMw - The Netherlands), in part to ensure uniform collection of outcome measures, thus promoting comparability between studies.
Since September 2014, TOPICS-MDS data are also collected within the ZonMw funded ‘Memorabel’ programme, that is specifically aimed at improving the quality of life for people with dementia and the care and support provided to them. In Memorabel round 1 through 4, 11 different research projects have collected TOPICS-MDS data, which has resulted in a pooled database with cross-sectional and (partly) longitudinal data of 1,400 older persons with early onset or advanced dementia and about 950 informal caregivers.
Read the rest (2 more)
Out of these numbers, a number of 919 concerns care receiver - caregiver dyads of whom information on both the care receiver and caregiver is available. More background information on both NPO and Memorabel 1-4 can be found in the overall information on TOPICS-MDS under the tab ‘Data files’ in DANS EASY (doi.org/10.17026/dans-xvh-dbbf). The 'TOPICS-MDS Memorabel 1-4 caregiver’ dataset, as part of the Memorabel 1-4 database, contains no care receiver (older person) data, only informal caregiver data.
The dataset includes data on age and gender of the caregiver and their relationship with the care receiver, as well as data on emotional health and well-being, quality of life, time spent on informal caregiving and caregiver burden. Although the TOPICS-MDS survey instrument for the caregiver was updated in 2019, the same initial version of the instrument was used in both NPO and Memorabel 1-4 projects. The TOPICS-MDS caregiver data from NPO and Memorabel 1-4 can therefore be easily merged.
Links
Where it is published
- Dataverse dataset page ssh.datastations.nl/dataset.xhtml?persistentId=doi%3A10.17026%2FDANS-XJ2-EP7T ↗
landing page · from ssh datastations nl
- Dataverse dataset page portal.odissei.nl/dataset.xhtml?persistentId=doi%3A10.17026%2FDANS-XJ2-EP7T ↗
landing page · from portal odissei nl
- DOI doi.org/10.17026/dans-xj2-ep7t ↗
DOI / persistent id · from ssh datastations nl
Catalogue records · 2
- Dataverse API ssh.datastations.nl/api/datasets/:persistentId/?persistentId=doi%3A10.17026%2FDANS… ↗
metadata API · from ssh datastations nl
- Dataverse API portal.odissei.nl/api/datasets/:persistentId/?persistentId=doi%3A10.17026%2FDANS… ↗
metadata API · from portal odissei nl
Topics
- Stated by source
- Medicine, Health and Life Sciences · Medicine, Health and Life Sciences · Social Sciences · Social Sciences
- From keywords
- Humanities · Life Sciences · Life Sciences · Medicine & Health · Medicine & Health · Social Science · Social Science
- Inferred from text
- Clinical sciences 71% · Longitudinal study 65%
Provenance · 2 source records, 19 field assertions
| Source | Key | Last seen | Raw |
|---|---|---|---|
| DANS Data Station Social Sciences and Humanities | doi:10.17026/DANS-XJ2-EP7T | 10 d ago | JSON v1 |
| ODISSEI Portal | doi:10.17026/DANS-XJ2-EP7T | 7 d ago | JSON v1 |
| Field | Assertion | Extractor | Evidence |
|---|---|---|---|
| concepts[field].anzsrc:group:3202 | enrichment · ssh datastations nl | taxonomy-embedding@1.1.0 | title+keywords+description (71%) |
| concepts[field].dataverse_subject:medicine-health-and-life-sciences | source · portal odissei nl | connector:portal_odissei_nl@1.0.0 | /subjects |
| concepts[field].dataverse_subject:medicine-health-and-life-sciences | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| concepts[field].dataverse_subject:social-sciences | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| concepts[field].dataverse_subject:social-sciences | source · portal odissei nl | connector:portal_odissei_nl@1.0.0 | /subjects |
| concepts[field].local:field:humanities | mapping · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| concepts[field].local:field:life-sciences | mapping · portal odissei nl | connector:portal_odissei_nl@1.0.0 | /subjects |
| concepts[field].local:field:life-sciences | mapping · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| concepts[field].local:field:medicine-health | mapping · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| concepts[field].local:field:medicine-health | mapping · portal odissei nl | connector:portal_odissei_nl@1.0.0 | /subjects |
| concepts[field].local:field:social-science | mapping · portal odissei nl | connector:portal_odissei_nl@1.0.0 | /subjects |
| concepts[field].local:field:social-science | mapping · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| concepts[method].local:method:longitudinal-study | enrichment · ssh datastations nl | keyword-concept-rules@1.0.0 | title+description (65%) |
| created_date | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | |
| description | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /description |
| publication_date | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | |
| title | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /name |
| updated_date | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | |
| version_label | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 |