Data Sheet 1_Undocumented migrants’ and asylum seekers’ healthcare rights and (medical) data protection: exploring digital health opportunities and risks through the use-case of an electronic personal health record for undocumented migrants and asylum seekers in the Netherlands.pdf

Participants reported that many remain unaware of their rights, and their vulnerable circumstances could further impede the effective exercise of these rights. Participants recognised the potential of EPHRs to improve care access and efficiency, however, risks were also mentioned about (medical) data protection, particularly due to access by government agencies or other third parties, and recommended a highly secure, privacy-by-design EPHR, transparent communication, targeted education, and end-user involvement in the design.</p>Discussion<p>This study highlights a central dilemma in digital health: whether and how an EPHR can enhance continuity of care for UDMs and asylum seekers without increasing risks of exclusion, forced disclosure, data misuse, or surveillance.

Guaranteed software safety, transparent communication, education of users and professionals, and an inclusive design are proposed as conditions for responsible EPHR implementation, alongside stronger enforcement and awareness of existing rights.</p>