Data · dataset · 2025
Dealing with uncertainty: a care-ethical, phenomenological study of people with relapsing-remitting Multiple Sclerosis (2021-2024)
Listed in DANS Data Station Social Sciences and Humanities
This dataverse includes the data collected for the study "Dealing with uncertainty: a care-ethical, phenomenological study of people with relapsing-remitting Multiple Sclerosis".
Description
The aim of the study was to understand how people with relapsing-remitting Multiple Sclerosis (RRMS) experience uncertainty and how the phenomenon of uncertainty appears in Dutch healthcare practice surrounding the care for people with RRMS. 17 people with a recent diagnosis of RRMS were interviewed about their experiences with uncertainty (2021-2022). 15 of them were prospectively followed and observed during hospital appointments (2021-2024).
At this point, the anonymized interview transcripts are available and can be accessed upon request.
Links
Where it is published
- Dataverse dataset page ssh.datastations.nl/dataset.xhtml?persistentId=doi%3A10.17026%2FSS%2F7T9L36 ↗
landing page · from ssh datastations nl
- DOI doi.org/10.17026/ss/7t9l36 ↗
DOI / persistent id · from ssh datastations nl
Catalogue records · 1
- Dataverse API ssh.datastations.nl/api/datasets/:persistentId/?persistentId=doi%3A10.17026%2FSS%2… ↗
metadata API · from ssh datastations nl
Topics
- Stated by source
- Arts and Humanities · Medicine, Health and Life Sciences
- From keywords
- Humanities · Life Sciences · Medicine & Health · Social Science
Provenance · 1 source records, 12 field assertions
| Source | Key | Last seen | Raw |
|---|---|---|---|
| DANS Data Station Social Sciences and Humanities | doi:10.17026/SS/7T9L36 | 10 d ago | JSON v1 |
| Field | Assertion | Extractor | Evidence |
|---|---|---|---|
| concepts[field].dataverse_subject:arts-and-humanities | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| concepts[field].dataverse_subject:medicine-health-and-life-sciences | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| concepts[field].local:field:humanities | mapping · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| concepts[field].local:field:life-sciences | mapping · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| concepts[field].local:field:medicine-health | mapping · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| concepts[field].local:field:social-science | mapping · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /subjects |
| created_date | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | |
| description | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /description |
| publication_date | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | |
| title | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | /name |
| updated_date | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 | |
| version_label | source · ssh datastations nl | connector:ssh_datastations_nl@1.0.0 |