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Data · dataset · 2025

Data for: Participating outcome of Akwenda Intervention Program for children with cerebral palsy in Uganda

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This was a cluster-randomized, controlled, single-blinded study on a cohort of children and young people with CP in the Iganga-Mayuge Health and Demographic Surveillance Site.

Description

The CP cohort was divided in two arms: one receiving the Akwenda Intervention program, and the other serving as control waiting to receive the intervention the following year. Children with seizures in both groups were provided anti-seizure medications.

Outcomes were assessed prior to and after the intervention period. The Excel sheet includes the data collected before the intervention started (2021; baseline), and after the 11 months intervention ended (2022; follow-up). Randomized, controlled, intervention trial.

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Baseline data: Sociodemographic information and clinical data including anthropometry, Gross Motor Function Classification System (GMFCS) levels. Primary outcome: Picture My Participation (PMP); frequency of attendance and level of involvement in 20 activities of daily living. The dataset contains of the following files: - Data sharing PMP Akwenda.xlsx (48.7 kB) - Documentation file data sharing PMP.docx Details about the variables in the tables can be found in the documentation file.

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