Data · dataset · 2009
Perspective of Good Death in Older Adults with Chronic Illness and Their Families
Listed in Harvard Dataverse
As the world population grows older, death is occurring later in life.
Description
Many older adults suffer from serious chronic illnesses before dying from complications of these illnesses. Although medical technology has made it possible to extend further the lives of older adults, these efforts sometimes result in great suffering before death.
Thus, gerontologists in Western countries have recently begun to advocate palliative care and good death in the care of older adults with severe chronic illnesses. In Taiwan, the family usually makes decisions regarding end-of-life treatment for an older patient, but these decisions may not necessarily be consistent with the patient’s wishes, especially if the wishes have not been conveyed. The purpose of this study is to explore perceptions of good death, end-of-life care decisions, and patient autonomy in older adults with chronic illnesses and their families.
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A convenience sample of older adults with chronic illnesses and their families was drawn from southern Taiwan, of which 94 pairs completed the interview. The majority of the older adults and their families believe that a terminal diagnosis should be disclosed to the patient. Fifty-four percent older adults versus 19% of family members (p < 0.01) believe that making health care decisions is not a burden to the patient.
Fifty-six percent of older adults versus 39% of family members (p < 0.05) believe that patients have the right to terminate their lives if there is no cure. Regarding to life sustaining treatment, both older adults and families would forgo invasive treatment such as surgery or CPR if cognitive function was impaired or the patient was in an irreversible coma. Older adults considered dying peacefully, no pain, without artificially prolonging life, short dying period, and love ones present as components of a good death.
Only 13% rated remaining mentally alert and only 21% rated fulfilling spiritual needs as essential in a good death. This research found that older adults value patient autonomy and patients’ rights in decision making. Dying peacefully without artificially prolonging life is a part of their wishes for a good death.
Links
Where it is published
- Dataverse dataset page dataverse.harvard.edu/dataset.xhtml?persistentId=doi%3A10.6141%2FTW-SRDA-E94028-1 ↗
landing page · from Harvard Dataverse
- DOI doi.org/10.6141/tw-srda-e94028-1 ↗
DOI / persistent id · from Harvard Dataverse
Catalogue records · 1
- Dataverse API dataverse.harvard.edu/api/datasets/:persistentId/?persistentId=doi%3A10.6141%2FTW-SR… ↗
metadata API · from Harvard Dataverse
Topics
- Inferred from text
- Demography 74%
Provenance · 1 source records, 6 field assertions
| Source | Key | Last seen | Raw |
|---|---|---|---|
| Harvard Dataverse | doi:10.6141/TW-SRDA-E94028-1 | 13 d ago | JSON v1 |
| Field | Assertion | Extractor | Evidence |
|---|---|---|---|
| concepts[field].anzsrc:group:4403 | enrichment · Harvard Dataverse | taxonomy-embedding@1.1.0 | title+keywords+description (74%) |
| created_date | source · Harvard Dataverse | connector:dataverse@1.0.0 | |
| description | source · Harvard Dataverse | connector:dataverse@1.0.0 | /description |
| publication_date | source · Harvard Dataverse | connector:dataverse@1.0.0 | |
| title | source · Harvard Dataverse | connector:dataverse@1.0.0 | /name |
| updated_date | source · Harvard Dataverse | connector:dataverse@1.0.0 |