Data · dataset · 2023
S-DeciDeD project; Shared Decision-Making regarding Dementia Diagnosis
Listed in IISH Dataverse
The decision on starting a diagnostic trajectory for dementia is considered a preference-based decision since the considerations and values of patients regarding the timing of initiating testing may vary given the lack of an effective medicine for dementia.
Description
In order increase the number of timely dementia diagnoses (i.e. a diagnosis at the time patients and their significant others perceive they can benefit most from a diagnosis) shared decision-making in general practice needs to be facilitated.
The goal of the S-DeciDeD project was to develop a patient decision-aid to improve shared decision-making regarding dementia diagnosis in general practice. First, in order to develop the patient decision-aid qualitative semi-structured interviews were conducted with patients with memory complaints, their significant others and general practitioners (GPs)/practice-based nurses to explore their experiences and preferences in the decision-making process for starting a diagnostic trajectory for dementia.
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In total, 14 GPs, 2 practice based nurses, 20 patients with memory complaints and 15 significant others were interviewed between March 2020 and December 2021. Second, after the development of the patient decision aid GPs and patients with memory complaints were interviewed about their experiences with the patient decision aid. In total, 5 GPs , 4 practice-based nurses, 3 patients and 2 significant others were interviewed between March and September 2022.
Moreover, online users completed a questionnaire on the acceptability of the patient decision aid. 94 users completed the questionnaire. A subset of these users were interviewed about their experience with the patient decision aid, 10 semi-structured interviews were conducted. The decision aid is published at Thuisarts.nl and can be found here : thuisarts.nl/keuzehulp/wel-of-geen-onderzoek-naar-dementie
Links
Where it is published
- Dataverse dataset page dataverse.nl/dataset.xhtml?persistentId=doi%3A10.34894%2F55LVY7 ↗
landing page · from datasets iisg amsterdam
- DOI doi.org/10.34894/55lvy7 ↗
DOI / persistent id · from datasets iisg amsterdam
Catalogue records · 1
- Dataverse API dataverse.nl/api/datasets/:persistentId/?persistentId=doi%3A10.34894%2F55LV… ↗
metadata API · from datasets iisg amsterdam
Topics
- Stated by source
- Medicine, Health and Life Sciences
- From keywords
- General practice · Life Sciences · Medicine & Health
Provenance · 1 source records, 10 field assertions
| Source | Key | Last seen | Raw |
|---|---|---|---|
| IISH Dataverse | doi:10.34894/55LVY7 | 5 d ago | JSON v1 |
| Field | Assertion | Extractor | Evidence |
|---|---|---|---|
| concepts[field].anzsrc:field:420304 | mapping · datasets iisg amsterdam | vocabulary-mapper@1.0.0 | keywords['General Practice'] |
| concepts[field].dataverse_subject:medicine-health-and-life-sciences | source · datasets iisg amsterdam | connector:datasets_iisg_amsterdam@1.0.0 | /subjects |
| concepts[field].local:field:life-sciences | mapping · datasets iisg amsterdam | connector:datasets_iisg_amsterdam@1.0.0 | /subjects |
| concepts[field].local:field:medicine-health | mapping · datasets iisg amsterdam | connector:datasets_iisg_amsterdam@1.0.0 | /subjects |
| created_date | source · datasets iisg amsterdam | connector:datasets_iisg_amsterdam@1.0.0 | |
| description | source · datasets iisg amsterdam | connector:datasets_iisg_amsterdam@1.0.0 | /description |
| publication_date | source · datasets iisg amsterdam | connector:datasets_iisg_amsterdam@1.0.0 | |
| title | source · datasets iisg amsterdam | connector:datasets_iisg_amsterdam@1.0.0 | /name |
| updated_date | source · datasets iisg amsterdam | connector:datasets_iisg_amsterdam@1.0.0 | |
| version_label | source · datasets iisg amsterdam | connector:datasets_iisg_amsterdam@1.0.0 |