Data · dataset · 2026
Parent carers of children with learning disabilities: examining the parental impact of caring and parent support needs
Listed in ZivaHub and Deakin Research Online and DMU Figshare — shown once because both records carry DOI 10.17034/32638896.v1
This thesis consists of a literature review and large scale research project.
Description
The literature review summarises existing knowledge relating to the parental impact of this parent carer role. The outcomes reported in the literature were also considered in relation to two key theoretical frameworks for understanding carer stress.
Research relating to parent support is also examined and implications of these findings are discussed. The Large Scale research project aimed to explore parent experiences of their child's learning disability diagnosis, their experiences of engaging with parent support and to examine parent support needs following diagnosis in Northern Ireland. Seven parents of children with a formal learning disability diagnosis were recruited for the study.
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Participants were recruited though the voluntary sector. Semi-structured interviews were completed with participants and interviews were transcribed and analysed using Interpretative Phenomenological Analysis (Smith, 2009). In line with IPA, member checking was used to enhance validity, credibility, and rigour.
The analysis revealed five superordinate themes: (1) The Diagnosis (2) “Thrust into” a new and unexpected role (3) Navigating the journey of learning disability (4) Connection, a new sense of belonging, “they just get it” (5) The support needs of parent carers. Key findings were in relation to the emotional experience of parents, unmet support needs, the need for information and importance of connection with others on the journey.
The findings highlight key implications for clinical practice, as well as the need for further research exploring outcomes of parent support.<br>
Links
Where it is published
- DOI doi.org/10.17034/32638896.v1 ↗
DOI / persistent id · from zivahub uct ac za
Catalogue records · 1
- OAI-PMH record api.figshare.com/v2/oai?verb=GetRecord&metadataPrefix=oai_dc&identifier=oai%3Af… ↗
metadata API · from zivahub uct ac za
Topics
Provenance · 3 source records, 14 field assertions
| Source | Key | Last seen | Raw |
|---|---|---|---|
| ZivaHub | oai:figshare.com:article/32638896 | 11 d ago | JSON v1 |
| Deakin Research Online | oai:figshare.com:article/32638896 | 11 d ago | JSON v1 |
| DMU Figshare | oai:figshare.com:article/32638896 | 11 d ago | JSON v1 |
| Field | Assertion | Extractor | Evidence |
|---|---|---|---|
| concepts[field].anzsrc:group:4204 | enrichment · zivahub uct ac za | taxonomy-embedding@1.1.0 | title+keywords+description (71%) |
| concepts[field].local:field:earth-environmental | mapping · dro deakin edu au | connector:dro_deakin_edu_au@1.0.0 | |
| concepts[field].local:field:earth-environmental | mapping · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| concepts[field].local:field:earth-environmental | mapping · figshare dmu ac uk | connector:figshare_dmu_ac_uk@1.0.0 | |
| concepts[field].local:field:medicine-health | mapping · figshare dmu ac uk | connector:figshare_dmu_ac_uk@1.0.0 | |
| concepts[field].local:field:medicine-health | mapping · dro deakin edu au | connector:dro_deakin_edu_au@1.0.0 | |
| concepts[field].local:field:medicine-health | mapping · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| concepts[field].local:field:psychology-behavioral | mapping · figshare dmu ac uk | connector:figshare_dmu_ac_uk@1.0.0 | |
| concepts[field].local:field:psychology-behavioral | mapping · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| concepts[field].local:field:psychology-behavioral | mapping · dro deakin edu au | connector:dro_deakin_edu_au@1.0.0 | |
| description | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | /metadata/dc/description |
| license_text | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| publication_date | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| title | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | /metadata/dc/title |