Constarium
← Search

Data · dataset · 2026

Developing a psychological intervention to support the mental wellbeing of expectant parents following antenatal diagnosis of congenital heart disease

Listed in ZivaHub and Deakin Research Online and DMU Figshare — shown once because both records carry DOI 10.17034/32805482.v1

Congenital Heart Disease (CHD) is the most common congenital abnormality, and advances in prenatal screening have increased the number of families receiving an antenatal diagnosis.

Description

While early detection offers clinical benefits, it is also associated with significant psychological distress for parents, including anxiety, grief, uncertainty, and trauma-related responses. Despite growing recognition<br>of these challenges, psychological support following antenatal CHD diagnosis remains limited.

This thesis presents a programme of research aimed at developing a psychologically informed intervention to support parental wellbeing following antenatal CHD diagnosis.<br><br>The first study used qualitative interviews to explore the experiences of parents and healthcare professionals involved in antenatal CHD care. Reflexive thematic analysis of parent interviews identified<br>four themes: suspended in uncertainty, layers of grief, finding a way through, and seeking a psychologically safe space.

Read the rest (3 more)

Interviews with healthcare professionals highlighted perceptions of parental coping, emotional needs, potential intervention components, and barriers to accessing psychological support within existing services.<br><br>The second study reports a scoping review synthesising interventions designed to support parental psychological wellbeing following antenatal diagnosis of fetal abnormalities. Twelve studies were identified, indicating a limited and early-stage evidence base.

Nevertheless, several potentially transferable components were identified, including support for emotional coping, trauma-informed care,<br>parent-baby bonding, and opportunities for peer connection.<br><br>The third study used the RAND/UCLA Appropriateness Method with parent (n=34) and professional (n=22) panels to prioritise key intervention components. High agreement was reached regarding hybrid delivery models, multidisciplinary collaboration, trauma-informed communication, information provision, and emotional support.<br><br>Findings from across the thesis informed the development of an intervention logic model and programme theory outlining how a psychologically informed intervention may support parental wellbeing following antenatal CHD diagnosis.

The thesis concludes with a feasibility protocol outlining next steps for evaluating acceptability, feasibility, and implementation within routine antenatal CHD services.<br><br><i>Thesis embargoed until 31st July 2028</i>

Links

Where it is published

Catalogue records · 1

Topics

Inferred from text
Cardiovascular disease 65% · Disease 75% · Heart 75% · Reproductive medicine 72%
Provenance · 3 source records, 18 field assertions
SourceKeyLast seenRaw
ZivaHuboai:figshare.com:article/3280548210 d agoJSON v1
Deakin Research Onlineoai:figshare.com:article/3280548210 d agoJSON v1
DMU Figshareoai:figshare.com:article/3280548210 d agoJSON v1
FieldAssertionExtractorEvidence
access_levelsource · zivahub uct ac zaconnector:zivahub_uct_ac_za@1.0.0
concepts[anatomy].local:anatomy:heartenrichment · zivahub uct ac zakeyword-concept-rules@1.0.0title+description (75%)
concepts[disease].local:disease:cardiovascular-diseaseenrichment · zivahub uct ac zakeyword-concept-rules@1.0.0title+description (65%)
concepts[disease].local:disease:diseaseenrichment · zivahub uct ac zakeyword-concept-rules@1.0.0title+description (75%)
concepts[field].anzsrc:group:3215enrichment · zivahub uct ac zataxonomy-embedding@1.1.0title+keywords+description (72%)
concepts[field].local:field:earth-environmentalmapping · figshare dmu ac ukconnector:figshare_dmu_ac_uk@1.0.0
concepts[field].local:field:earth-environmentalmapping · zivahub uct ac zaconnector:zivahub_uct_ac_za@1.0.0
concepts[field].local:field:earth-environmentalmapping · dro deakin edu auconnector:dro_deakin_edu_au@1.0.0
concepts[field].local:field:medicine-healthmapping · dro deakin edu auconnector:dro_deakin_edu_au@1.0.0
concepts[field].local:field:medicine-healthmapping · zivahub uct ac zaconnector:zivahub_uct_ac_za@1.0.0
concepts[field].local:field:medicine-healthmapping · figshare dmu ac ukconnector:figshare_dmu_ac_uk@1.0.0
concepts[field].local:field:psychology-behavioralmapping · zivahub uct ac zaconnector:zivahub_uct_ac_za@1.0.0
concepts[field].local:field:psychology-behavioralmapping · figshare dmu ac ukconnector:figshare_dmu_ac_uk@1.0.0
concepts[field].local:field:psychology-behavioralmapping · dro deakin edu auconnector:dro_deakin_edu_au@1.0.0
descriptionsource · zivahub uct ac zaconnector:zivahub_uct_ac_za@1.0.0/metadata/dc/description
license_textsource · zivahub uct ac zaconnector:zivahub_uct_ac_za@1.0.0
publication_datesource · zivahub uct ac zaconnector:zivahub_uct_ac_za@1.0.0
titlesource · zivahub uct ac zaconnector:zivahub_uct_ac_za@1.0.0/metadata/dc/title