Patient and public involvement in designing, delivering and disseminating core outcome set (COS) studies, what does it look like? – An animation

The outcomes used in research may also not be relevant to patients. So, what’s the solution? Well, if all studies in a particular health condition included the same outcomes, they could all be compared and combined – we call this a ‘core outcome set’.

Core outcome set studies bring all key stakeholders together ( including patients) to agree on which outcomes are crucial to measure in research studies for a particular condition. Consensus methods like surveys and meetings are used to come to an agreement. Involving patients in designing and delivering these studies helps to make sure the study is accessible and appropriate way for patients to take part in.

Our video tells the story of Dev, a patient research partner and Lei, a researcher leading the study, who worked together to design a core outcome set study that is accessible to patients. This video has been developed by the COMET (Core Outcome Measures in Effectiveness Trials) Initiative which brings together people interested in developing and using core outcome sets. comet-initiative.org/