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Table · dataset · 2026

Care and services for children with cerebral visual impairment – barriers, facilitators and experiences: a mixed-methods systematic review

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<p>To examine the experiences of patients and/or caregivers of care/services for children with cerebral visual impairment (CVI), as well as the barriers and facilitators to access and delivery of care/services for children with CVI.</p> <p>A systematic review of mixed-methods studies reporting patient and/or caregiver experiences of services, impact on quality of life, and barriers/facilitators to care and services, for children with CVI.

Database searches (to July 2026), a call for evidence and quality appraisal were conducted. A thematic synthesis approach was utilised, and descriptive themes were mapped onto the Capability, Opportunity and Motivation (COM-B) model and Theoretical Domains Framework.</p> <p>Included studies (<i>n</i> = 23) spanned education, healthcare and home settings and involved children, caregivers, teachers, educational specialists and healthcare professionals (<i>n</i> > 1,430).</p> <p>Key barriers and facilitators shaping the experience of families/professionals dealing with CVI were found, including fragmented services hindering coordinated care, however, collaboration across settings created supportive environments.</p> <p>This review demonstrates that challenges in CVI care and service provision are best understood as interacting behaviours and systemic determinants, rather than isolated service failures.

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A shift in approach from episodic, diagnosis-led care to more co-ordinated, functionally orientated models of care spanning education, healthcare and home contexts are required.</p> <p></p><p>Many barriers to (re)habilitation for children with cerebral visual impairment (CVI) arise at the interfaces between healthcare, education and family support.</p><p>(Re)/habilitation pathways should reduce reliance on informal family care coordination by embedding collaborative planning and information sharing.</p><p>Barriers identified reflect modifiable behavioural and organisational influences rather than the consequences of CVI.</p><p>Useful facilitators for developing models of (re)/habilitation include; timely recognition of CVI, professional understanding of functional visual needs and multidisciplinary collaboration.</p><p></p> <p>Many barriers to (re)habilitation for children with cerebral visual impairment (CVI) arise at the interfaces between healthcare, education and family support.</p> <p>(Re)/habilitation pathways should reduce reliance on informal family care coordination by embedding collaborative planning and information sharing.</p> <p>Barriers identified reflect modifiable behavioural and organisational influences rather than the consequences of CVI.</p> <p>Useful facilitators for developing models of (re)/habilitation include; timely recognition of CVI, professional understanding of functional visual needs and multidisciplinary collaboration.</p>

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figshareoai:figshare.com:article/3384433612 d agoJSON v1
FieldAssertionExtractorEvidence
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