Data · collection · 2019
Adapting and pre-testing the World Health Organization’s Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia
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The World Health Organization’s Caregiver Skills Training programme for children with developmental disorders or delays teaches caregivers strategies to help them support their child’s development.
Description
Ethiopia has a severe lack of services for children with developmental disorders or delays. This study explored the perspectives of Ethiopian caregivers, professionals and other stakeholders to inform adaptation and implementation of the World Health Organization’s Caregiver Skills Training in Ethiopia.
Data collection included (1) a consultation and review, comprising stakeholder meetings, review of draft Caregiver Skills Training materials and feedback from Ethiopian Master Trainees and (2) a pre-pilot including quantitative feasibility and acceptability measures and qualitative interviews with caregivers (n = 9) and programme facilitators/observers (n = 5). The consultation participants indicated that the Caregiver Skills Training addresses an urgent need and is relevant to the Ethiopian context.
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Several adaptations were proposed, including more emphasis on psycho-education, stigma, parental feelings of guilt and expectations of a cure. The adapted Caregiver Skills Training was pre-piloted with excellent participation (100%) and retention (90%) rates. Four themes were developed from the qualitative data: (1) Programme acceptability and relevance, (2) Perceived programme benefits, (3) Challenges and barriers and (4) Suggestions for improvement.
The World Health Organization’s Caregiver Skills Training addresses a local need and, with careful adaptations, is feasible and acceptable to be implemented in Ethiopia. These findings may have relevance to low-resource settings worldwide.
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- Repository landing page sage.figshare.com/collections/Adapting_and_pre-testing_the_World_Health_Organiza… ↗
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- DOI doi.org/10.25384/sage.c.4517957.v1 ↗
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- CC BY 4.0 creativecommons.org/licenses/by/4.0 ↗
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- IsSupplementTo 10.1177/1362361319848532 doi.org/10.1177/1362361319848532 ↗
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Topics
- Stated by source
- Clinical medicine · Educational sciences · Health sciences · Psychology
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Provenance · 1 source records, 11 field assertions
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|---|---|---|---|
| DataCite | 10.25384/sage.c.4517957.v1 | 12 d ago | JSON v1 |
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