Data · dataset · 2026
Living and dying with advanced Oesophago-gastric cancer: perspectives of the patient and carer
Listed in ZivaHub and Deakin Research Online and DMU Figshare — shown once because both records carry DOI 10.17034/32638863.v1
Being diagnosed with advanced cancer is a life-altering experience that can exacerbate an array of psychosocial issues in both patients and their informal carers.
Description
Oesophago-gastric cancer, in particular, is a complex disease known for its aggressive nature, high rate of recurrence, and poor prognosis. Previous research has identified sustained psychological morbidity amongst the survivor population and their carers, yet relatively few studies have explored the psychosocial impact of advanced disease.
With this in mind, this thesis sought to develop an evidence-based understanding of patients' and carers' lived experiences of advanced oesophago-gastric cancer, with a broader goal of informing care and support to this clinical population. The findings acknowledge that the illness has the potential to substantially interfere with the psychosocial functioning of both patients and their carers, requiring an ongoing and effortful process of adjustment.
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Attention is also paid to the challenges this population face when navigating a complex and multi-faceted care pathway, revealing a number of unmet care needs. These findings are considered and discussed alongside the theoretical framework of the Common-Sense Model of Self-Regulation (CSM) (Leventhal et al., 2016) as a sounding board to make sense of the participants' lived experiences and process of adjustment over time.<br><br><i>Thesis is embargoed until 31 December 2028.</i>
Links
Where it is published
- DOI doi.org/10.17034/32638863.v1 ↗
DOI / persistent id · from zivahub uct ac za
Catalogue records · 1
- OAI-PMH record api.figshare.com/v2/oai?verb=GetRecord&metadataPrefix=oai_dc&identifier=oai%3Af… ↗
metadata API · from zivahub uct ac za
Topics
Provenance · 3 source records, 16 field assertions
| Source | Key | Last seen | Raw |
|---|---|---|---|
| ZivaHub | oai:figshare.com:article/32638863 | 6 d ago | JSON v1 |
| Deakin Research Online | oai:figshare.com:article/32638863 | 6 d ago | JSON v1 |
| DMU Figshare | oai:figshare.com:article/32638863 | 6 d ago | JSON v1 |
| Field | Assertion | Extractor | Evidence |
|---|---|---|---|
| access_level | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| concepts[disease].local:disease:cancer | enrichment · zivahub uct ac za | keyword-concept-rules@1.0.0 | title+description (75%) |
| concepts[disease].local:disease:disease | enrichment · zivahub uct ac za | keyword-concept-rules@1.0.0 | title+description (75%) |
| concepts[field].anzsrc:field:420316 | mapping · dro deakin edu au | vocabulary-mapper@1.0.0 | keywords['palliative care'] |
| concepts[field].anzsrc:field:420316 | mapping · zivahub uct ac za | vocabulary-mapper@1.0.0 | keywords['palliative care'] |
| concepts[field].anzsrc:field:420316 | mapping · figshare dmu ac uk | vocabulary-mapper@1.0.0 | keywords['palliative care'] |
| concepts[field].local:field:earth-environmental | mapping · dro deakin edu au | connector:dro_deakin_edu_au@1.0.0 | |
| concepts[field].local:field:earth-environmental | mapping · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| concepts[field].local:field:earth-environmental | mapping · figshare dmu ac uk | connector:figshare_dmu_ac_uk@1.0.0 | |
| concepts[field].local:field:medicine-health | mapping · figshare dmu ac uk | connector:figshare_dmu_ac_uk@1.0.0 | |
| concepts[field].local:field:medicine-health | mapping · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| concepts[field].local:field:medicine-health | mapping · dro deakin edu au | connector:dro_deakin_edu_au@1.0.0 | |
| description | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | /metadata/dc/description |
| license_text | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| publication_date | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| title | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | /metadata/dc/title |