36 datasets

ZivaHub + Deakin Research Online + DMU Figshare2026 · dataset

Background: In the intensive care unit (ICU), many patients are dying despite advanced therapeutic technology and optimised treatment. The critical care team is expected to deliver end-of-life care for the dying patient and their family. However, it is challenging to provide adequate support to families due to the ideas and emotions associated with the end of life. This can be influenced by differ

ZivaHub + Deakin Research Online + DMU Figshare2026 · dataset

Being diagnosed with advanced cancer is a life-altering experience that can exacerbate an array of psychosocial issues in both patients and their informal carers. Oesophago-gastric cancer, in particular, is a complex disease known for its aggressive nature, high rate of recurrence, and poor prognosis. Previous research has identified sustained psychological morbidity amongst the survivor populatio

ZivaHub + Deakin Research Online + DMU Figshare + UCL Research Data Repository2026 · dataset · unknown

<p>SYSTEMATIC REVIEW:</p><p>Abstract</p><p>Background: Work stress can impact on palliative care andhospice healthcare professionals (HCPs) well-being. Elevated and prolongedperiods of work stress can lead to burnout. Research has struggled to capturethe prevalence of burnout and it has been reported that hospice HCPs presentwith less symptoms of burnout than palliative care HCPs working in otherh

ZivaHub + Deakin Research Online + DMU Figshare + UCL Research Data Repository2026 · dataset · unknown

<b>1) Immersive Virtual Reality Interventions and Psychological Adjustment in Adult Chronic Physical Illness: A systematic review</b><br><br>The review examined how immersive virtual reality (VR) interventions are used and evaluated in adult chronic physical illness populations to improve individual psychological adjustment. A total of 20 studies met inclusion criteria and formed the basis of this

ZivaHub + Deakin Research Online + DMU Figshare2026 · dataset · unknown

In recent years, there have been increasing opportunities for developing new and diverse creative arts-based interventions for use in palliative care to benefit multiple patient outcomes. This research project covers the design and implementation of individual Listening Experiences and presents and discusses feedback from a feasibility study conducted at an outpatient service in Northern Ireland.

ZivaHub + Deakin Research Online + DMU Figshare + UCL Research Data Repository2026 · dataset · unknown

Multimorbidity is common in older patients. Consequently, polypharmacy and potentially inappropriate prescribing (PIP) are prevalent and increase toward the end of life (EOL). One potential solution is deprescribing, a supervised discontinuation of inappropriate medicines. The overall aim of this thesis was to explore prescribing and deprescribing patterns in hospice care settings, to evaluate cur

ZivaHub + Deakin Research Online + DMU Figshare + HKU DataHub + Swinburne Figshare + DaYta Ya Rona + SUNScholarData + figshare + Loughborough Research Repository + GRANTS Data + UP Research Data Repository2026 · Astronomical catalogue

Background<p>Parkinson’s disease (PD) is the second most common neurodegenerative disorder in the United States and a growing driver of late-life disability and death. We characterized U.S. PD-related mortality from 1999 to 2025 and projected it to 2030.</p>Methods<p>In this serial cross-sectional analysis of CDC WONDER Multiple Cause of Death data, PD-related deaths in adults aged ≥45 years were

ZivaHub + Deakin Research Online + DMU Figshare2026 · dataset

<p dir="ltr">A Chinese migrant father sits in a wheelchair in a New Zealand hospital corridor, facing the cold light of the ward. Behind him, an adult child looks back towards a doorway that opens onto a familiar home: a warm lamp, a family photograph, a red couplet wishing good fortune. The wheelchair rests on the line where the two floors meet. Nobody has moved. Not yet.<br><br>My PhD explores h

ZivaHub + Deakin Research Online + DMU Figshare + HKU DataHub + Swinburne Figshare + DaYta Ya Rona + SUNScholarData + figshare + Loughborough Research Repository + GRANTS Data + UP Research Data Repository2026 · Astronomical catalogue

Background<p>In long-term care facilities, regular proxy-completed multidimensional assessments may help staff detect meaningful decline in residents with dementia, including temporal changes in physical symptoms, mood, behavior, and social interaction.</p>Methods<p>We conducted a secondary analysis of publicly available, de-identified longitudinal IPOS-Dem data from a Swiss stepped-wedge cluster-

figshare2026 · Astronomical catalogue

<p dir="ltr">Conjunto de dados agregados relacionado ao manuscrito “Formação em cuidados paliativos na fisioterapia à luz da bioética”. O estudo investigou a percepção de estudantes de Fisioterapia sobre a formação em cuidados paliativos e a contribuição da bioética para o enfrentamento de conflitos éticos. A amostra compreende 100 participantes, distribuídos pelas coortes de matrícula 2018 a 2020

figshare2026 · Astronomical catalogue

<p dir="ltr">This dataset contains the data extraction table from a systematic review on the roles and outcomes of volunteers in palliative care. It includes 29 studies with details on authors, year, country, aim, study design, sample, and key findings.</p>

IISH Dataverse2026 · dataset · unknown

This project aimed to develop and validate a theoretical framework of end-of-life communication by nursing staff as part of advance care planning for older people.

IISH Dataverse2026 · dataset · unknown

Necrotizing enterocolitis (NEC) is a severe gastrointestinal disorder primarily affecting preterm infants. In advanced stages, surgical intervention may represent the only viable option for survival. However, high peri-operative mortality and post-operative morbidity rates make the decision between surgery and palliative care ethically and clinically complex. We conducted a discrete choice experim

ZivaHub + Deakin Research Online + DMU Figshare + HKU DataHub + Swinburne Figshare + DaYta Ya Rona + SUNScholarData + figshare + Loughborough Research Repository + GRANTS Data + UP Research Data Repository2026 · Astronomical catalogue · unknown

Supplementary Material 1: Supplementary File 1 – JBI Critical Appraisal Table. This file presents the assessment of methodological quality of all studies included in the review, conducted using the JBI Critical Appraisal Checklist for Qualitative Research. Supplementary File 2 – PRISMA 2020 Checklist. This file contains the completed PRISMA 2020 checklist, indicating the location within the manusc

REDU - Unicamp Institutional Research Data Repository2026 · dataset · unknown

A qualitative study was conducted, based on interviews with coordinators of home care services, primary care, emergency care units, and specialized palliative care services, regarding the provision of this approach in the public health network of a municipality with 1,300,000 inhabitants. The data provided are the interview guide to the conversations held with interviewees. It is not possible to p

Teesside University Research Data Repository2026 · dataset

Perceived self-efficacy on Advance Care Planning in Latin America: ACP-SE Latam validation

Tecnológico de Monterrey Data Hub2026 · dataset · unknown

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DANS Data Station Social Sciences and Humanities + ODISSEI Portal2025 · dataset · unknown

The survey was conducted in 2016 among 356 older Dutch adults. It contains the following questionnaires: the general self-efficacy scale (GSE), the narrative foreclosure scale (NF), the EQ-5D-5L scale (health-related quality of life), the ICECAP-O scale (the ICEpop (Investigating Choice Experiments for the Preferences of Older People) CAPability measure for Older people), the Interpretation Of Dea

IISH Dataverse2025 · dataset · unknown

In this study the effect of a clinical decision support system (CDSS-OPTIMED) was studied to support physicians in their decision-making about deprescribing of medication for patients in the last phase of life. This was a national, multicenter, step-wedge clustered randomized controlled trial. Adult patients with a life-expectancy of at least 2 weeks and at most 3 months were eligible. When patien

Borealis2025 · dataset · unknown

Ce jeu de données contient les stratégies de recherche pour MEDLINE All (Ovid), CINAHL Complete (EBSCOhost), APA PsycInfo (Ovid), Embase (Ovid) et Web of Science Core Collection (SCI-EXPANDED, SSCI, AHCI, CPCI-S, CPCI-SSH, ESCI). Quand on les exécute dans leur base de données respective, ces stratégies repêchent les articles sur les concepts de réalité virtuelle et de soins palliatifs. Le nombre d

IISH Dataverse2025 · dataset · unknown

When patients with incurable cancer do not have any standard treatment options anymore, they can sometimes decide to participate in an early phase clinical trial (i.e. experimental treatment with uncertain outcomes). The decision to participate or not can be complicated for patients. This study evaluated the impact of the OnVaCT intervention, a narrative-based Online Value Clarification Tool (OnVa

Illinois Open Data Portal2025 · dataset

Directory of physical residential facilities licensed in Illinois as Hospice Residences under the Hospice Program Licensing Act (210 ILCS 60) and 77 Ill. Adm. Code 280, Subpart D. A Hospice Residence is a separately licensed home, apartment building, or similar building providing living quarters where hospice services are delivered to facility residents. Each Hospice Residence must be owned or ope

IISH Dataverse + ODISSEI Portal2023 · dataset · unknown

Title The spiritual dimension in palliative medicine: a qualitative study of learning tasks – medical students, teachers, educationalists Summary We developed a coherent set of eight learning tasks to teach students how to communicate about the four dimensions of palliative care, with a particular focus on the spiritual dimension. The learning tasks were developed in accordance with instructional

IISH Dataverse + ODISSEI Portal2023 · dataset · unknown

Title A national, palliative care competency framework for undergraduate medical curricula Summary Based on the literature and the results of the first study, we curated a list of six key competencies and corresponding sub-competencies. We asked five groups of stakeholders from five different professional backgrounds (i.e., palliative care professionals, physicians, nurses, educators and junior do

IISH Dataverse + ODISSEI Portal2023 · dataset · unknown

Title Design and evaluation of a learning assignment In the undergraduate medical curricula on the four dimensions of care: a mixed method study Summary To learn about the four dimensions of medical students interviewed a chronically ill or palliative care patient about the four dimensions of care during a fifth-year internship. They then wrote a report and a critical reflection of their interview